¹Perelman, Philadelphia, United States
²Hollister Incorporated, Libertyville, United States

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Introduction: The real-life challenges faced by individuals performing intermittent self-catheterization (ISC) are not well understood [1], [2], [3]. The Continence Care Registry (ConCaRe™) is a longitudinal study that collects electronic patient-reported outcomes (ePRO) to explore catheter preferences, healthcare usage, and the impact of ISC on the quality of life (QoL) from intermittent catheter users.

Methods: Baseline data were analyzed from a SCI subgroup (n=118), (82 males, 35 females, 1 non-binary) participants across the United States, Canada, and the United Kingdom. Thirty-six percent reported being employed at least part-time. Data were derived from the Intermittent Self-Catheterization Questionnaire (ISC-Q) and registry specific questions. Descriptive statistics were used.

Results: Sixty-nine percent rated their overall health from good to excellent (72% men, 60% women), while 31% rated it from fair to poor. In the last year, 34% (23% men, 37% females), reported being diagnosed with a UTI by a healthcare provider two or more times. Medical visits or consultations related to possible UTI symptoms included 12 emergency room visits, 5 urgent care visits, 210 specialist visits, and 23 general practitioner visits. Fifty-three percent (36% men, 54% women), of those in the SCI subgroup worry about the risk of long-term problems from using their catheter.

Conclusion: The results indicate that while a majority of the SCI subgroup rated their overall health positively, notable gender differences exist. Recurrent UTIs are a common issue, particularly among females, leading to frequent medical visits. For those who are employed, these health issues can negatively impact work productivity due to increased absenteeism and reduced focus.

Conflict of interest: Authors J. Simmons & D. Gordon are Hollister Incorporated employees. D. Newman is a consultant for Hollister Incorporated.

This study was funded by Hollister Incorporated.

Literatur

[1] Logan K, Shaw C, Webber I, Samuel S, Broome L. Patients' experiences of learning clean intermittent self-catheterization: a qualitative study. J Adv Nurs. 2008 Apr;62(1):32-40. DOI: 10.1111/j.1365-2648.2007.04536.x
[2] Blanc BF, Rodríguez-Almagro J, Lorenzo-García C, Alcaraz-Zomeño E, Fernandez-Llorente G, Baixauli-Puig M, Martín-Bermejo MV, Estudillo-González F, Ortega-Checa MA, Lluesma-Martinez V, Ferrández-Franco G, Benito-Santos B, Rodríguez-Díaz M, Torres-Bacete A, Guerrero-Andrades MC, Louis-Lauture MP, Jiménez-Mayorga I, Serrano-Abielar R, Garrido-Mora MA, Barcia-Barrera F, Asensio-Malo G, Morcillo-Marín M, Tendero-Ruiz S, Hernández-Martínez A. Quality of Life and Autonomy in Patients with Intermittent Bladder Catheterization Trained by Specialized Nurses. J Clin Med. 2021 Aug 30;10(17):3909. DOI: 10.3390/jcm10173909
[3] Santos-Pérez de la Blanca R, Medina-Polo J, González-Padilla D, Cano-Galán MM, Arrébola-Pajares A, Hernández-Arroyo M, Rodríguez-Antolín A. Evaluation of Quality of Life and Self-reported Complications in Patients With Clean Intermittent Catheterization: An Observational Study. J Wound Ostomy Continence Nurs. 2023 Sep-Oct 01;50(5):400-405. DOI: 10.1097/WON.0000000000001002