26isfam112 10.3205/26isfam112 urn:nbn:de:0183-26isfam1126 Meeting Abstract Philip Philip Pernilla Manjula PM

Sandberg Instituut

author German Medical Science GMS Publishing House

Düsseldorf

610 20260612 engl This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. Dieser Artikel ist ein Open-Access-Artikel und steht unter den Lizenzbedingungen der Creative Commons Attribution 4.0 License (Namensnennung). M0652 112 International Society for Arts and Medicine The Healing Arts – Forging Alliances of Arts & Medicine Presentation Abstracts Berlin 20260618 20260620 26isfam112 TextI am an artist and educator based in Amsterdam whose work examines how chronic illness meets the medical industry. I focus on DIY and open-source medical tools that expose fragilities in systems of care and question dominant ideas of expertise.Objective: These tools reveal how sick and disabled people navigate medical authority by creating their own forms of knowledge. I aim to show how living with chronic illness confronts how race, ableism, and institutional structures shapes access to care. I look at safety as a complex and situated practice shaped by lived experience.Method: By combining artistic research with participatory workshops, I use speculative prototypes, audio/video work and writing to trace the social and political conditions in which DIY medical solutions emerge and to understand ways that Crip communities create models of care that support sick and disabled people, such as myself.Conclusion/Results: My research brings artistic practice, DIY medical knowledge, lived experience into one shared space. It aims to build alliances between art, care, and medicine. 0 0 0 0